NEURODIVERSITY &
THE AUTISM SPECTRUM
Neurodiversity is an idea that asserts that atypical
(neurodivergent) neurological development is a normal human difference
that is to be tolerated and respected as any other human difference.[1]
The concept of neurodiversity is embraced by some autistic individuals
and people with related conditions, who believe that autism is not
a disorder, but a part of their identity, so that curing autistic
people would be the same as destroying their original personalities.
Proponents prefer the term over such labels as "abnormal"
and "disabled". Some groups apply the concept of neurodiversity
to ADHD, developmental speech disorders as well as dyslexic, dyspraxic
and hyperactive people.
History of the term
The earliest published use of the term appears
in a New York Times article by Harvey Blume on September 30, 1998:[2]
“ Neurodiversity may be every bit as crucial for
the human race as biodiversity is for life in general. Who can say
what form of wiring will prove best at any given moment? Cybernetics
and computer culture, for example, may favor a somewhat autistic
cast of mind. ”
Previous to this, although Blume did not make
explicit use of the term Neurodiversity, he wrote in a New York
Times piece on June 30, 1997:[3]
“ Yet anyone who explores the subject on the Internet
quickly discovers an altogether different side of autism. In cyberspace,
many of the nation's autistics are doing the very thing the syndrome
supposedly deters them from doing -- communicating. Yet, in trying
to come to terms with an NT-dominated world, autistics are neither
willing nor able to give up their own customs. Instead, they are
proposing a new social compact, one emphasizing neurological pluralism.The
consensus emerging from the Internet forums and Web sites where
autistics congregate (...) is that NT is only one of many neurological
configurations -- the dominant one certainly, but not necessarily
the best.
Blume is also notable for his early public advocacy
and prediction of the role the internet would play in fostering
neurodiversity.[4]
“ There is a political dimension to this bond
with the Internet. A project called CyberSpace 2000 is devoted to
getting as many people as possible in the autism spectrum hooked
up by the year 2000, reason being that "the Internet is an
essential means for autistic people to improve their lives, because
it is often the only way they can communicate effectively."
[ ... ] the community of autistics, which may not have matured and
come to self-awareness without the Internet, presents the rest of
us with a challenge.
The challenge we will all be increasingly confronted
with, on-line and off, is, to look at ourselves differently than
we have before, that is, to accept neurological diversity.
NT is only one way to be.”
The term mostly appears within the online autistic
community, but its usage has spread to a more general meaning; for
example, the Developmental Adult Neurodiversity Association (DANDA)
in the UK encompasses developmental dyspraxia, ADHD, Asperger syndrome
and related conditions.[5] Usage of the term has seen a boost with
a 2004 New York Times article by Amy Harmon, "The Disability
Movement Turns to Brains".[1]
<
Views on prejudice
This section does not cite any references or sources.
Please improve this section by adding citations to reliable sources.
Unverifiable material may be challenged and removed. (November 2007)
The term neurodiversity is usually used as a statement
against alleged prejudice and bigotry towards sufferers of autism
and other neurological disorders, which has been claimed to be the
following by neurodiversity proponents:
Attempts to cure, medicate, institutionalize or
force behavioral changes in autistics either against their will
or without knowing their will.
References to the neuroanatomical differences of autistics as "abnormalities"
or "damage".
Intolerant attitudes toward autistic behavior that may be perceived
as odd or unusual.
Intolerance toward difficulties autistic people often have.
Discrimination against people for being autistic or because of autistic
traits or behaviors.
Lack of accommodations for difficulties associated with autism.
Attitude that autistics are inferior to neurotypical people.
Belief that autism is a disease that needs to be cured or that there
is something wrong with being autistic.
Institutions designed without consideration of autistics (for example:
schools with heavy demand on social skills that may be hard for
autistics).
Barriers to participation in society due to difficulties associated
with autism that could have been accommodated (for example, a technically
competent autistic person may lose a job because of social awkwardness
or may never get past the interview stage).
Lack of protection for autistics in equal employment opportunity
legislation.
Administration of drugs to children for minor conditions that won't
affect their normal development such as ADHD.
<
Proponents and opponents
Please improve this section by adding citations
to reliable sources. Unverifiable material may be challenged and
removed. (November 2007)
Many supporters of neurodiversity are anti-cure
autistics, who are engaged in advocacy; some parents of autistic
children also support neurodiversity. Such parents say they value
their children's individuality and want to allow their children
to develop naturally. For example, Morton Ann Gernsbacher is a parent
of an autistic child and a psychology professor, who argues that
autistics need acceptance, not a cure, and endorses the theory that
autism cannot be separated from the person.[6] According to proponents,
autistics may need therapies only to cure comorbid conditions, or
to develop useful skills. Forcing autistics to act as desired, or
trying get rid of autistic neurological wiring is condemned. The
proponents think that if autistics face more difficulties in life,
the source are the society's institutions and habits, not autism
itself.
The arguments for considering autism and other
conditions a form of neurodiversity (as opposed to true disorders)
are the following:
It has not been demonstrated that autistic behavior,
in all or most cases, has a cause that is pathological in nature.
Autism is about as heritable as personality or IQ.
The genetic variations (or alleles) that account for the autism
genotype have not been shown to be pathogenic, and in fact, some
of the gene loci identified so far are prevalent in the general
population. Even if a genetic variation is a rare mutation, that
in itself does not imply pathology.
Some autistics report that they like being autistic, or that autism
confers them with a special way of looking at the world, or a special
talent, claiming that autism "is a beautiful thing." This
is inconsistent with the way most pathologies are perceived by sufferers.
Autism is not life-threatening in general, as the life expectancy
of autistics is about the same as that of neurotypicals.
Because autistic people usually have some challenges in life, there
are some people who think finding a cure for autism would be in
the best interest of autistics. These people believe a cure for
autism is the best way to solve the problems of autistics, and see
it as unfair and inappropriate to characterize the desire to cure
autism as bigotry. At issue is whether autism, ADHD and other conditions
are true disorders or better explained as neurodiversity. The term
has not been addressed much in the scientific literature; as of
2007, no reference to the term appears in the Medline index.
References
1 Harmon, Amy. Neurodiversity Forever; The Disability
Movement Turns to Brains. The New York Times, May 9, 2004. Retrieved
on 2007-11-08.
2 Blume, Harvey. "Neurodiversity", The Atlantic, September
30, 1998. Retrieved on 2007-11-07.
3 Blume, Harvey. "Autistics, freed from face-to-face encounters,
are communicating in cyberspace", The New York Times, June
30, 1997. Retrieved on 2007-11-08.
4 Blume, Harvey (July 1, 1997). "Autism & The Internet"
or "It's The Wiring, Stupid". Media In Transition, Massachusetts
Institute of Technology. Retrieved on 2007-11-08.
5 Home page. DANDA. Retrieved on 2007-11-08
6 Gernsbacher, Morton Ann. "Autistics Need Acceptance, Not
Cure". autistics.org, April 24, 2004. Retrieved on 2 February
2007.
Click here
to read the fact sheet on Community, Politics & Culture of Autism.
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range of Asperger's and Autism fact sheets at www.autism-help.org
This autism fact sheet is licensed under the GNU
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